8 February 2018 - 9 February 2018
Location:Groningen, the Netherlands
Topics of the conference are:
- Diagnoses, Interventions, and Outcomes in Patient & Family Engaged Care
- Exploring effective interdisciplinary strategies to foster
- Patient and Family Engagement in care
Supportive technologies in patient, and family engaged care
Increasingly supportive technologies in family engaged care are exploited. New movements in this area are for instance ‘the e-patient-movement’, ‘the Quantified Self-movement’, and telemonitoring. Technological progresses related to ICT, e-health / digital health, and human interface solutions are gradually more acknowledged by patients, families, patient federations, family care associations, as well as by health care professionals. The monitoring of individual and family data in home and healthcare settings for safety and quality reasons is forthcoming. Data can be used to contribute to the information content of the electronic health care record, diagnoses decision support systems, as well as for monitoring and evaluation of family members themselves. The development of remote monitoring devices can enlarge family access to own data, and may be supportive for people to remain at home by using devices to compensate for disability, vulnerability, and impaired function by personalized use, and by family use.
We welcome research as well as best practices, and best failures in the area of family care supportive technologies and related implementation strategy
Patient and family engaged care over Lifespan
Patient and family engagement in care is relevant for various health care professionals and for the broad spectrum of clinical areas, e.g. acute care, chronic care, mental health care, paediatric care, end-of-life care. The conference is therefore open to studies and projects describing the impact of illness, disability and caregiving within families, and care and support needs of these families within these different clinical areas in health care. Furthermore we welcome studies and projects that involve effective interventions and strategies to foster patient and family engagement in care. How can we enhance collaboration between professionals and families? and what are dilemma’s in involving families in patient care? Studies and projects may be initiated by different health care disciplines or from an interdisciplinary perspective and may target all kinds subgroups within health care; varying from patients, persons or families dealing with mental health problems, acute physical or chronic diseases or physical and/or mental disabilities.
Comparing family care across countries and across subgroups will be the focus of this theme.
Outcomes of patient and family engaged care
As health care systems are changing towards more patient and family engagement, quality of care needs to be redefined. New indicators and instruments are needed to measure this new definition of quality of care. New measures are needed to measure outcomes 1) in families, such as functional stressors, family engagement and family functioning, 2) in the care processes such as care coordination, collaboration and communication between families and health care professionals, and 3) in terms of effects and efficiency of new care strategies.
Furthermore, performing solid scientific research within the context of families is a challenge requiring specific methodologies and techniques to analyse data collected from families.
We welcome research studies developing and testing family-focused measures and studies that present innovative research methodologies and techniques to analyse data designed research in family care.